My song for the past four months has to be this one. I have never experienced such a bad patch and I can tell you I was scared to death. My regular readers will have noticed that I have not updated my page in 4 months and that is not at all like me. I usually have something to say every week. It all started in July with a sore throat and …..click to read more COPD – WHEN THINGS GET OUT OF CONTROL
DONT FORGET YOUR FLU JAB!!
FEATURED POSTS – SEE LEFT SIDE PANEL FOR OTHER POSTS
COPD – WHEN THINGS GET OUT OF CONTROL
How to Manage Your COPD Like a Respiratory Therapist – Part 1 and Part 2 this is a great piece by My COPD Team which is a social network for those living with COPD.
My trip to see the Wigan Warblers and the COPD Athlete – Includes reversing the downward spiral
Falling off the precipice – and my appointment at the Royal Brompton.
MY PIP EXPERIENCE – A complete fiasco!
Lung Reduction Surgery, Valves, Coils and Further New Developments
The 10-Step Program – does it work? – GREAT BOOK
A Short Walk a Day Helps COPD Patients Stay Out of the Hospital
TVs Nadia Sawalha Highlights the Struggle COPD Sufferers Have Every Day
BREATHING SPACE ROTHERHAM
BreathingSpace in Rotherham improving mortality rates and quality of life for people with COPD and only 23 miles from me! And I am going after Xmas!!
Why didn’t I know about this before? BreathingSpace was conceived to provide the UK’s leading, and possibly the world’s largest rehabilitation service for people with chronic obstructive pulmonary disease (COPD). The funding was obtained through a partnership between the Coalfields Regeneration Trust (CRT) and Rotherham Primary Care Trust (PCT) with the support of Rotherham Borough Council.
They provide the following services:
- Pulmonary rehabilitation (a breathing exercise and education programme) – six week outpatient programme
- 20 inpatient beds providing care during acute episodes
- Full oxygen assessment service including assessment for ambulatory oxygen
- Lifestyle and education sessions
- Smoking cessation support and advice
- A residential breathing exercise and education programme (up to seven days)
- Respite care for people with a known respiratory condition (up to seven days)
- Hospice care for appropriate people with chronic respiratory disease
- Education for all involved in caring for people with COPD and other respiratory conditions
- Support to health care services in the management of patients with COPD and other respiratory conditions, including support with early supported discharge and admission avoidance
- 24-hour helpline for patients, carers and healthcare professionals
WITHENSHAW HOSPITAL – MANCHESTER
Withenshaw Hospital is situated in Manchester and is a fantastic hospital for people with COPD and Asthma. This is the hospital that I have now been referred to after my crisis.
Keep fighting there is no other way with this illness. Don’t just sit back and think things will get better. The following is a link to a two-part post which I have edited from My COPD Team which gives you ideas how to do this. See – How to Manage Your COPD Like a Respiratory Therapist – Part 1 and Part 2.
NO MATTER HOW PAINFUL DO YOUR PULMONARY REHAB!!
IS YOUR HOUSE POISONING YOU?
Well another week and another infection, or is it the same one? People with COPD as well as asthma have a very difficult time as it is absolutely impossible to remove everything from your home that can trigger an attack. Because your airways are smaller now and after years of using your bronchodilators are not quite as effective as they used to be. Things can get a bit impossible at times and a hospital stay is required to settle the inflammation.
Sometimes your trigger can be a plain old virus that you have picked up from your child or grandkids, what would be an inconvenience to them could mean a hospital stay for you or at least a week in bed taking a load of meds that you don’t want to take. So what can we do? I have found this situation almost impossible. I have got rid of my gas appliances except of course the central heating. I have got a brand new electric cooker and it is so much better for me cleaning wise. Because I think I might have given myself a cold from not using the Gas fire, tomorrow I have a lovely new Dimplex real flame fire arriving as I have had my gas fire cut off. These things I can have control of. There are many that we cannot control such as pets, dust (it always seems to be there) and our Grandchildren. I often say to my daughter don’t bring them down if they are ill but then I just can’t resist seeing them they are so lovely and they raise my spirits no end. So all we can do is do our best and be sensible.
If anyone has any further ideas on how to cleanse your home please leave a comment and I will include it in my next post.
WHAT MOTIVATES YOU ON A BAD DAY? – Some of my biggest motivators!
MUSIC – THIS IS SO GOOD FOR THE LUNGS
What keeps me going with this illness on my bad days when I am stuck in is MUSIC and my taste is very diverse. From the tacky to the classics. I discovered YouTube and all the free entertainment, just a click away. I have always loved singing even when I am told I can’t sing by my family (so cruel). Music has always been a big motivator for me, it has also been proven to be a great exercise for the lungs. Hey Google it, and see what you find! In the meantime sing along with one of my favorite songs below.
CHILDREN AND GRANDCHILDREN I AM SO THANKFUL TO HAVE THESE LITTLE PEOPLE IN MY LIFE!
My children and my Grandchildren are my greatest motivators. They enrich my life so very much you just can’t feel sorry for yourself when those little faces are about. Its awesome when you think you have created all these people!
She has really given me some perspective over this illness she has pulled me up and yes at times ground me down However if it hadn’t been for her perseverance I don’t think I would have been able to give up the Cigs and stick to my diet and exercise. She showed me I could do it and I couldn’t let her down now could I?
AND CANT LEAVE THIS PAGE WITHOUT REMINDING EVERYONE THAT ITS XMAS SOON!!!!